Get To Know I/DD

Individuals with intellectual or developmental disabilities: answers, statistics, and more.

With millions of individuals afflicted by I/DD and so much to learn, a good starting place is essential. Let's start with the fundamentals.

For families of newly diagnosed children or those new to activism, intellectual and/or developmental impairments can be perplexing terminology.

People with I/DD have the ability to live meaningful and fulfilling lives.

 

Support & Terminology

While a person can have both an intellectual and a developmental impairment, there has been some confusion in the past about how the words were employed. "Developmental disability," or "DD," is a word that has been used to describe a wide range of impairments. Although the more succinct and more frequent "I/DD" helps to simplify things, don't be shocked if "DD" is still widely used by some organizations—it doesn't always prohibit intellectual disability.

 

What does it mean to have an intellectual disability (ID)?

ID is defined by considerable limits in intellectual functioning (mental ability, learning, etc.) and adaptive behaviors, while particular classifications differ by state (conceptual, practical, and social skills typically learned from an early age).

 

What is the definition of a developmental disability (DD)?

Specific definitions vary by state and may include intellectual disability, however developmental disabilities may include physical problems that are present at birth or develop later in life.

 

What kind of help is available for those with I/DD?

There are several options available, ranging from Medicaid waivers to handle the financial aspects of professional I/DD therapies and supports to community support groups and disorder-specific organizations. Connecting with a variety of them can help people and families "connect the dots" between financial needs, education, and the exchange of ideas in our society.

 

Disorders of the I/DD

The following disorders can cause intellectual / developmental disabilities:

• Down's Syndrome is a condition in which a person is born
• Smith-Magenis Syndrome is a condition that affects a person's ability (SMS)
• Autism
• TBI stands for traumatic brain injury.
• Cerebral Palsy is a condition that affects the brain.
• Fetal Alcohol Syndrome (FAS) is a condition that affects
• Fragile X Syndrome (FXS) is a genetic disorder that affects
  
  

Do your state agencies know who you are?

Do you know what types of services are available?

Only around 20% of the estimated 7.3 million persons in the United States with I/DD are aware of or have received treatment from state agencies (source: Larson et al, 2018). Yes, this is a low number. The number of persons getting supported assistance, on the other hand, has risen year after year! This is due to a combination of increased financing and improved awareness of programs and services that can assist our I/DD population. Still, because waiting lists for Medicaid services are widespread, it's critical to apply as soon as possible.